Dad, 84, ‘under awful stress’ as son’s care package set to end

Dad, 84, ‘under awful stress’ as son’s care package set to end

Alphie Lonergan, 84, serves as the main caregiver for two of his adult children, Ronan and Donall, both in their 40s with severe learning disabilities. The pair live at home in Loughgilly, a rural area of County Armagh, relying on their father for daily support. A significant shift occurred in 2024 when their care package was reduced from three hours to just one hour per day, with the full cut scheduled to take effect this weekend.

“Thank God I’m in good shape, physically. Mentally I’m under awful, awful stress,” Alphie said, expressing concern over the impending loss of support. He described the strain of managing both sons alone, particularly with Donall requiring extensive routines before being ready for the day.

The Southern Health Trust acknowledged the stress the Lonergan family has endured but attributed the decision to a shortage of social care staff. The trust noted that while it is collaborating with the family, recruitment challenges persist, especially in rural regions like Loughgilly.

Donall, who also has autism and obsessive compulsive disorder, currently receives a one-hour daily visit to assist with morning tasks. Alphie shared that Donall brushes his teeth three times and checks his laces six times before getting up, highlighting the meticulous nature of his morning routine.

Ronan’s care support was reduced in March 2024, prompting a decline in the time carers spend at home. During the day, both sons attend centers in nearby towns, but Alphie remains their sole provider. “Donall doesn’t get up until the carer arrives—you can’t lift a boy in his 40s out of bed and get him up on his feet who doesn’t want to do it,” he added.

Alphie’s two daughters offer some assistance, yet the family’s uncertainty is spreading tension. “My daughters were thrown in at the deep end from an early age,” he said. “They have their own children, hold down jobs, and I often have to call them: ‘Would you come down here, I’m stuck.’” He emphasized the added pressure this places on them.

Donall’s late-night behavior further complicates Alphie’s rest. “I wouldn’t be sleeping that great,” the father admitted. “He walks from room to room, closing doors. I’m aware of it, I can’t switch off.”

Southern Health Trust’s Response

The Southern Health Trust stated it is exploring alternatives to sustain the service for the Lonergan family. This includes reviewing staff schedules in Armagh and surrounding areas and connecting with other support teams to provide additional help. Despite efforts, no extra staff have yet committed to the region.

In November, it was revealed that some social care workers would not benefit from the pay offer given to Northern Ireland healthcare professionals. The offer, designed to prevent industrial action, covered doctors, nurses, and auxiliary staff, but excluded independent homecare workers. Funding for the Real Living Wage was available, yet it failed to secure their support.